Patient No More

Patient No More

Chapter 3: I Just Want To Feel Better

What's a Diagnosis and Why Does It Matter?

Helene M. Epstein's avatar
Helene M. Epstein
Feb 28, 2025
∙ Paid
An abstract rendering of a patient seeking an accurate diagnosis as if painted by Joan Miro
Seeking an accurate diagnosis, as interpreted by AI

I often hear from patients so frustrated in their search for a diagnosis, they no longer care what it’s called. “I’m so tired looking for answers.” “I just want to feel better.” “Why can’t someone help me?”

Too often, they’re experiencing a level of intractable pain and exhaustion that leaves them living a subterranean existence, no longer able to work or leave their beds. I know from my own experience that this kind of pain-with-no-name disrupts sleep, work, time with family, clear-headed thinking, planning, and evaluation. All of which makes the process harder.

More American adults are misdiagnosed every year than are diagnosed with heart disease, cancer and stroke together!

Why is Getting an Accurate Diagnosis So Important? My son nearly died at 15 because he was misdiagnosed over 15 times. His treatments temporarily camouflaged his progressing symptoms. When the treatments became ineffective, and his doctors refused to reconsider hi…

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